We are still here. I know hospitals are great, because they "fix" you, or get you better, but this stinks! No home comfort, we miss our puppies, our bed, my cooking! So far, we have no news on Tab, or when we will get to go home. They came in this morning and took him for a CAT scan, but we don't have any results yet. He is hanging in there, still in pain, and still getting MEGA doses of IV antibiotics. We still haven't gotten the blood cultures back yet, so we are just in limbo, which just plain stinks!
I talked to Caroline's specialist this morning, and the decision was made to go ahead and admit her to the hospital. We will be admitting her on Monday morning at 9am. We will stop the steroid treatment and begin the 5-day IV immuno globulin transfusions. I am just so torn with the situation. I know in my heart that this is the best treatment for her. Not only will I have less worry about her being at home and being inactive, but they will be able to monitor her around the clock, and make sure she is doing okay. They will test her counts daily, and God willing they will go up, and we won't have to do the other tests {bone marrow biopsy}.
God asks so much of us as parents, and I only hope that I can remain strong for Caroline. She has no idea yet that she will be going to the hospital, and that will be such a hard conversation for her. She can't stand the idea of the hospital, poor sweet baby girl. She remembers the week she spent 2 years ago, and the constant poking and prodding!
I am headed to her school now to find out what we need to do on that front. They have a teacher at the hospital that will help with schoolwork that she has, so that's nice. It will give her a sense of normalcy in this crazy time.
That's it for now, I will update more when I have more for you! Thank you from the bottom of our hearts for your continued love, support, and prayers! Keep them coming!
Love,
Tab, Alicia & Caroline
Merry Christmas from the Sims Family
2 days ago
5 comments:
Sending prayers for your family :)
Wishing you guys all the best...
When Alexie was not even 12 months old she had to have a port put in her chest for monthly IVIG infustions (and constant blood work), so I can relate to how you are feeling. But you are so right...at least you know she will be taken care of in the hospital. Praying for answers and peace for all that is going on in this season of life! Love you, girl!
Prayers pouring out to you guys!!! Hang in there!
~Elyse~
Thanks again for keeping us posted. I have a prayer book I read every night and I found a small verse from the bible that made me think of you.
"Do not be afraid. Stand still, and see the salvation of the Lord, which He will accomplish for you today" Exodus 14:13
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